Healthcare Advocacy Client Forms
Resources
Below you will find some resources that many of my clients have found helpful. They include resources to help you understand medical terminology, some resources for some of the most common medical conditions I have worked on with clients, and books I recommend on medical care.
Where to look for trustworthy medical information:www.uptodate.com
This is a very good and detailed explanation of just about everything. It will tell you all kinds of treatments for all kinds of problems. www.webmd.com/ Also a very good and trustworthy website for information. www.health.nih.gov/ This is a government website, and it has information about the health of different cultural groups (African, Hispanic, etc). It also has information about clinical trials (these are studies where a new treatment is being used and you have to be part of the study to get the treatment). www.mayoclinic.com/ An excellent, trustworthy site for health information from one of the best medical centers in the country, and in fact, the world. www.healthcare.gov/ This is an amazingly good website that the government has just put up that deals with all the recent and evolving changes in the healthcare laws. It also helps you figure out where to get insurance based on where you live and your general information. It does not require any personal information for these answers. www.babylon.com/define/63/Medical-Terminology-Dictionary.html This is a good site to look up a medical word you don’t understand. www.familydoctor.org Symptom decision trees, self-care information. www.patientslikeme.com First-hand accounts of people living with various diseases. A social network and resource base for patients who have questions. Resources for specific medical conditions:Cancer
www.cancer.gov National Cancer Institute provides information on types of cancer, clinical trials, drug protocols, sites for treatment of cancers www.breastcancer.org Risk, diagnosis and treatment information www.cancer.org/docroot/home/ American Cancer Society Heart disease and Stroke www.americanheart.org American Heart Association. www.nhlbi.nih.gov Symptoms, diagnosis and treatment. Diabetes www.diabetes.niddk.nih.gov Guide to diabetes care and research. www.diabetes.org Nutrition information, prevention, treatments. Patient Safety www.campaignzero.org/ www.hospitalcompare.hhs.gov Hospital success rates by diagnosis and surgery. Aging Aging with Pride: National Health, Aging, and Sexuality/Gender Study www.alz.org Alzheimer's Association www.medicare.gov/ Medicare www.naela.org National Academy of Elder Law Attorneys Inc. www.caremanager.org/ National Association of Professional Geriatric Care Mangers www.ncoa.org/ National Council on Aging Medications www.drugs.com Pill identification, side effects and drug interactions. www.nlm.nih.gov/medlineplus/druginformation.html Information on drugs, drug interactions, usage, side effects. Includes information on mineral and vitamin supplements. www.fda.gov Research on medications and drug safety. Books about medical care—what every patient should know:
Your Medical Mind: How to Decide What Is Right for You
by Jerome Groopman, MD and Pamela Hartzband, MD Complications: A Surgeon's Notes on an Imperfect Science By Atul Gawande Better: A Surgeon's Notes on Performance By Atul Gawande The Checklist Manifesto: How to Get Things Right By Atul Gawande You, the Smart Patient: An Insider’s Handbook for Getting the Best Treatment by Mehmet Oz, M.D., and Michael Roizen M.D. How Doctors Think by Jerome Groopman, MD |
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